Links

Here are some useful links to other sites. If you have a site and you would like us to link to it, please contact the webmaster. Equally, if you have visited a site and found it useful or interesting, let us know about it and we will add it to our list of links.

Homepage of Lucy Pearson - Lucy has severe congenital heart disease. Her homepage tells her story so far and shares her achievements and challenges.

Left Heart Matters - a support group for children who have the congenital heart defect known as Hypoplastic Left Heart Syndrome.

Children's Heart Federation - CHF is a federation of local and national support groups. Families in these groups live throughout the UK and Ireland. CHF provides a freephone helpline and email service, respite care, family support grants, blood test monitors for home use, and a network of computers in hospitals so children can continue their education.

Contact A Family - Contact a Family (CaF) is the only UK charity providing support and advice to parents whatever the medical condition of their child.

Downs Heart Group - The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects.

CHARGE Family Support Group - Offers support to families and carers of children with CHARGE syndrome.

Heart Transplant Families Together - HTFT are a group of people who have as, parents, relatives, carers and medical staff, experienced the close association with children who have been diagnosed as having some form of heart or heart/lung illness and in many cases have undergone heart or heart/lung transplantation.